Only 20% of English councils have signed up to a campaign charter for disabled children since it launched in October 2006.
The charter sets out to commit councils to deliver “decent” services to families with disabled children.
These include appointing key workers to co-ordinate services, involving service users with service planning and providing families with information.
According to the Every Disabled Child Matters’ campaign manager, Steve Broach, only 6% of families with disabled children are provided with special support from the state.
EDCM aims to push all 150 councils into signing up to the charter before the delivery date in January 2008.
“It is shocking that the vast majority of families are left to care alone. This is why eight in ten families with severely disabled children say that are at breaking point. This has to change, and we want every council to start by making a commitment to sign our campaign charter,” said Broach.
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