NEW LAUNCH

http://www.thesophiestory.co.uk

Created by Neil and Annette Patmore, whose daughter the site is named after, http://www.thesophiestory.co.uk aims to offer advice, information and an online meeting place for the families of children with life-limiting conditions. It contains details of their own experiences of caring for Sophie, who suffers from mitochondrial disease, medical information about the condition, as well as blogs, useful links and tips on fundraising. However, the most useful feature for parents and professionals is likely to be in the chat facility that should enable contributors to share their experiences and learnings about caring for children with long-term health problems.