Surveying older service users' opinions of the services they
receive, as demanded in a recent White Paper, presents particular
difficulties.
Charles Patmore, Hazel Qureshi and Elinor Nicholas look at
different ways of consulting them
From April 2000, according to the White Paper Modernising Social
Services, social services departments must conduct surveys of
satisfaction among service users and family carers. A particular
challenge will be to consult frail older people who receive home
care, since many of them have infirmities which make common survey
methods difficult.
We have gained insights into how older home care clients can
comment on their services during a current research project, funded
by the Department of Health. Our research interviews included
questions to 88 older community care clients about how they would
like their views on services to be obtained. We used one-to-one
interviews, questionnaires, focus groups and some phone conference
with housebound clients.
While many older people find one-to-one phone interviews fully
acceptable, many others dislike phone interviews strongly. Dislikes
reflected problems in hearing or in holding telephones, and the
ease with which a phone interview could be sprung on you without
preparation. Thus phone interviews should not be the sole channel
for a consultation. But they can be usefully offered as an option
alongside individual interview at home.
Family carers for older people were notably positive about
consultation in groups. This would combine communicating their
views with meeting other family carers. Also they wished to be
interviewed apart from the person they cared for, something which a
home interview would not necessarily provide. Family carers were
also more positive about questionnaires than older service
users.
Many older service users voiced similar suggestions about their
ideal interviewer. They wanted to be interviewed at home by a
senior manager of their own services - someone clearly senior to
the manager immediately responsible for their care. They believed
that senior managers needed direct, eyewitness education in older
people's everyday realities to be able to influence and act on
policy. Also, our interviewees felt that senior managers had a
moral obligation, if they cared about older people, to investigate
first-hand the results of the services which they headed. We found
this preference for interview by senior managers only among older
people, not among family carers or younger social services clients.
Social services staff, in contrast, often believed older people
would prefer an interviewer who was independent from social
services.
Other aspects which our interviewees said mattered included an
interview process which gave them control over the interview. They
wanted space to deliver their own considered message. They
preferred questions to be mailed in advance so they could prepare
their responses, not have topics sprung on them. They wanted clear
pledges that they could decline any topic without further enquiry.
Women should be offered women interviewers, some felt. Feedback on
the practical consequences of consultations was also named as very
important. To date we have tried their suggestions about giving
feedback on results and mailing interview questions in advance.
Both were much appreciated.
What could these findings mean for next April's satisfaction
surveys? Arguably, written self-completion questionnaires should
not be used. Their use was widely criticised, sometimes very
forcefully, for excluding people for whom reading or writing had
become difficult. Questionnaires were also disliked because they
are impersonal, often of wearisome volume, and have ready-supplied
answers.
Instead some sort of interview is needed and this, inevitably,
would mean using a small enough sample for interviews to be
practicable. A solution may be to offer a choice of home interview
or phone interview to a carefully selected sample of service
users.
Modernising Social Services states that a few standard questions
will be supplied nationally for the satisfaction surveys, otherwise
they will be designed locally. We have found it perfectly possible
to incorporate some structured satisfaction ratings within oral
interviews with older home care clients. Indeed, oral interviews
can obtain full explanations for each question and thus the reasons
behind a particular score can be brought out. We interviewed local
social services managers, who compared favourably the quality of
guidance from in-depth interviews with small samples of service
users to outputs from written questionnaires involving much larger
numbers.
Individual interviews, face-to-face or by phone, are better
suited to the assessment of satisfaction than focus groups. We
compared results from groups and from individual interviews and,
post-research, re-interviewed some group members on their own.
Sometimes group members had hidden their views during a group
consultation. Also, groups can present a misleadingly uniform
picture of sources of satisfaction among home care clients. For
instance, groups can present punctuality or relationships with
staff as commonly valued, whereas individual interviews show great
differences between individuals on such counts. A survey which
seeks to understand and improve satisfaction without investigating
each individual's priorities will often miss the point.
If only small samples can be interviewed, those samples need to
be selected so that they are representative. We recruited home care
interviewees via an administrative database and could thus
separately consult people who received different intensities of
service. Thus a satisfaction survey could represent separately
people receiving more than ten hours home care per week and people
receiving less, following definitions for the proposed social
services performance indicators¬ . We found social services
staff valued such separate feedback. We selected names from the
database, then checked with home care organisers whether these
clients were well enough before asking them for an interview.
Approaches are needed which maximise participation in
interviews. In our research, illness, dementia and speech or
hearing problems were common reasons why home care organisers
excluded people. We noted how communications on tape or in Braille
could assist participation by blind people. People from ethnic
minority groups may need interviewing in their own language - we
found Asian people much preferred an interview to translations of
written questionnaires. Agreement to participate in interviews
should increase if professionals follow the preferences named by
our interviewees, such as the advance mailing of questions or, very
importantly, getting feedback on results of the survey. The latter
means social services should plan uses for the satisfaction surveys
other than simply reporting them.
What, then, about our interviewees' top-ranking preference: the
challenging idea that senior managers should interview them? We
have begun a practical trial of its usefulness within a social
services department. Watch this space.
¬ Department of Health A New Approach to Social Services
Performance, DoH, 1999
Charles Patmore, Hazel Qureshi and Elinor Nicholas are
researchers on the Outcomes Programme, Social Policy Research Unit.
For information contact Social Policy Research Unit, University of
York, York YO1 5DD
Gathering opinion from older people
· Offer a choice of an individual home interview or a phone
interview.
· Check how well interviewees represent clients in age,
gender, ethnicity and disability.
· Mail them the questions in advance.
· Consider social services managers as interviewers -
people more senior than the line manager to the client's service
providers.
· Offer women interviewers to women.
· Plan uses for the information collected and feed back the
results to interviewees.
Method of research
Our research interviews included questions to 88 older community
care clients about how they would like their views on services to
be obtained. Nine different sets of older social services clients
were interviewed, including housebound people receiving high levels
of home care and ethnic minority groups. Interview methods included
focus groups, individual interviews and telephone conferences.
Having a personal interview at home was their first choice
because it could reach a wider range of people with health,
mobility or vision problems.
Written self-completion questionnaires were widely criticised,
sometimes very forcefully, for excluding people for whom reading or
writing had become difficult. These questionnaires were also
disliked because they are impersonal, often of wearisome volume,
and have ready-supplied answers. In contrast, a personal interview
let clients put their views in their own words. While we never
directly tested self-completion questionnaires, the widespread
opposition to the very idea cast doubt on their viability.
We conducted focus groups and asked about their usefulness. On
the positive side, focus groups could certainly be run successfully
with older community care clients. Indeed, group consultation was
often the runner-up to home interviews in popularity. But, among
people picked from home care lists and invited to a group, there
was vastly higher agreement to participate among people aged 65-79
than among those aged 80 and more. The latter were the clear
majority on these home care lists yet, had our consultation used
only groups, they would have been barely represented.
All the people invited had been rated able to travel by their
home care organisers and were offered free transport to the groups.
Nevertheless, people more than 80 years old would often turn down
focus groups but agree to an interview at home. They were happy to
be in focus groups if they were held at day centres or clubs where
they were already present, but the latter approach cannot represent
the many home care clients who do not use day centres - around 85
per cent of the city-wide home care list in our study.
It is necessary to check how well the age range of participants
in a consultation matches that of the people whom this sample
should represent. Appropriate proportions of people aged more than
80 and 85 are needed and we found they could best be reached
through home interviews. Our study also included some telephone
conferences for house-bound people receiving intensive home care.
These worked well but, like groups, seemed more likely to recruit
people from the 65-79 age range.