People who develop dementia should be informed of their illness so they can take steps to adapt their lives and plan for the future, according to a new report from the Mental Health Foundation.
The report is based on a study by the University of Stirling which says all 24 people interviewed welcomed being told about the diagnosis of dementia. The news was difficult to accept, but the benefits outweighed the limitations.
The foundation has recommended GPs make a diagnosis as early as possible and that practitioners recognise that people have a right to know even if it causes them distress. Services should work collaboratively, using consistent terminology, so that each person receives clear information, says the report.
At present there is no clear policy on disclosure, and studies have found GPs reluctant to tell patients of the diagnosis of dementia.
Ruth Lesirge, chief executive of the Mental Health Foundation, said: "People must be given the opportunity to consider what lies ahead and make provision for a time when they may not be able to make their wishes known."
'Tell Me the Truth' available from 020 7535 744.
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