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Personal experiences which have influenced the lives and opinions of those involved in social care

Posted: 15 August 2002 | Subscribe Online


The service user's perspective is one we rightly aim to integrate into our work. Yet how do social care professionals draw on their own experiences of receiving care? Recently, I returned to practice after working for many years in non-operational areas of social services. I wanted to rediscover my capacity to engage with people living different lives from my own.

But things were not as straightforward as I expected. I soon found out that clients could draw me into territory uncomfortably close to my own stresses and traumas. Once I was reminded of being a service user myself, I had my own resistance to contend with as well.
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Almost 20 years ago, I woke up one morning and, without warning, collapsed. At the time, I was a social worker in a busy inner London team but, within hours, I had become a medical "case", at risk of severe disability. I underwent major surgery and spent many months recovering, in pain and depression. When I gradually returned to work, my prime goal was to put it all behind me.

I knew I had locked my memories of that time away from myself, but returning to practice finally made me re-examine how I had processed the experience. I had a nagging doubt that crossing the line from care giver to care receiver had challenged my sense of power and that, when I recovered, I quickly rushed back to professional "safety", locking the door firmly behind me. Yet this didn't sound quite right. It wasn't like me to be unable to reach the lessons of my own experiences. I needed to know more.

Very slowly, I started to prod at my processing of the event to understand it better. Carefully, I opened the locked door and peeped inside. And there it was, the worst feeling of all: the desperation that never left me, at being trapped inside my own body and unable to escape the terrible things happening to me.
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It helped me move on a little. Now, I can accept that what I feared might be denial or paternalism was probably a normal way of processing this experience, and managing the trauma psychologically. It makes no sense for me professionally, let alone personally, to experience this feeling again each time I connect with a client who wants to escape from the life they feel trapped in.

I have freed myself to recognise the ways my perspective as a user are operating in me. I can see that my strong views about the power of information-giving are the result of the distress I felt at only holding partial information about the complicated surgery I faced. I can identify with and tolerate the self-absorption that comes from deep stress. Perhaps I was mistakenly looking for total enlightenment from my experiences, but these smaller fragments of understanding are just as valuable.

Helen Keville is a family mediator and former user of medical services.


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