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What happened to the 'ethical vision'?

Posted: 17 April 2003 | Subscribe Online


George Wilson, 83, is dreading the move from his care home, Delamere House in Merseyside. The dementia unit is owned by Southern Cross Healthcare, which operates 130 care homes in the UK and is suffering large financial losses.

St Helens Council has refused to pay more to the company, a reaction typical of a nationwide crisis. This time, the families of residents of Delaware House have used the law. They have argued that the "life-threatening" move breaches the European Convention on Human Rights and that the council should increase payments to Southern Cross.
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Last week in the High Court, Mr Justice Silber ruled there was "totally inadequate" evidence that rendering the residents homeless infringed their human rights.

His judgement is a double blow. First, if successful, it would have provided a precedent that would have saved other homes. Second, it is an indictment of the conservative way in which the Human Rights Act 1998, which came into force in October 2000, is so often interpreted in the courts.

Francesca Klug, director of the Human Rights Act Research Unit has argued that this, our first bill of rights, gives an opportunity in amoral times, "to infuse a distinct ethical vision into life in the UK". In the Appeal Court, Judge Stephen Sedley has said that it has the potential to create "a common sense of equity, an ethic of kindness" which distinguishes justice from law.

The residents of Delamere House - one elderly woman who died during the court battle had been moved four times in 10 years - are losing more than a roof over their heads, disturbing enough as that is for people of any age. They are crucially forfeiting a world in which they have both a sense of safety and a voice that is heard - surely the most basic of human rights in a democracy.
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In a study published by the Joseph Rowntree Foundation two years ago, Kate Allen explored how people with dementia in day, long-term and residential care were encouraged to express their views - most often by staff learning individuals' non-verbal forms of communication.

This "language" is highly individualised and, as Allen's study reports, takes a care worker time to understand. But the result is not only highly rewarding; it is also vital to the rights of the individual who continues to be a citizen whether they are nine or 99.


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