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The system seems oblivious to need

Posted: 10 July 2003 | Subscribe Online


I've worked within social services and health for 15 years and I have always known that it is an inadequate and overstretched service, but I recently had personal experience of the gaping holes in the net.

My mother-in-law is informally caring for the children of her young niece, who died in the past few weeks from cancer. She had been caring for her niece and children for the last couple of weeks at her own home, after she discovered the squalor they were living in. The same squalor the nurses had not apparently brought to anyone's attention when they went in to check on her niece's colostomy and intravenous line.
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My mother-in-law received no financial help or any other support in this task, which included regularly taking her niece to the specialist cancer hospital, and she was at a loss as to how she could access any help.

No one has even asked my mother-in-law if she can manage the children or assessed whether she is a suitable and safe person. She is a wonderful person, but she is a retired widow with little money and a chronic health problem, and she shares the care for her frail mother and a disabled grandchild.

I am trying to help because I know something about the way that social services work. Otherwise how would things have ever been sorted out - when a crisis arose? Apparently, the older child had been missing school as his mother was too ill to make sure he attended. Why did no one follow up on the care of the children? Education and health were both involved, but never seemed to talk to one another or social services.
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Why was it so acceptable for a relative to take on the care of the children? Surely the Victoria Climbi' Report highlights the risks of making assumptions about the safety and appropriateness of relatives.

In health and social services we are always talking about improvements and changes, but we think from the inside-out, even when we are consulting with users.

Professionals need to have enough space, training, supervision or whatever it takes to be aware of those things that are beyond the end of their nose. It is complicated and it takes more thought than blanket "policy making".

It obviously takes more resources too, but far less than allowing unpaid carers to break down and do untold damage for generations to come.

The writer, who wishes to remain anonymous, is a project manager for learning difficulties services in a social services department


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