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Trust us, we can keep a 'secret'

Posted: 09 June 2005 | Subscribe Online


Being a service user myself, I am interested in service provision. So for the past eight years I have worked within a large mental health trust in south west London. For the most part this has taken the form of my helping people with mental health problems to access employment.

But my plans to become a service provider provoked resistance from my previous mental health team. They were concerned about my robustness, and about the ethics of service users having access to sensitive information about themselves and others.
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However, it seems that the expertise of people who have "been there" is finally being recognised. People who years ago would have felt they had to keep quiet are happier to "out" themselves as ex-service users. And some professional courses are even involving service users to help educate future practitioners.

But despite the progress, not everyone is happy with the idea of letting "them" (the service users) become "us" (the mental health workforce). The same issues come up time after time. One that particularly grates is: "will people be mindful of confidentiality?"

Having had notes written about personal and sensitive areas of your life makes you more aware of the importance of maintaining other people's dignity and respecting their privacy.

It is ridiculous that some people worry about employees who have been service users coming across the notes of someone they know. Many health and social care staff come across details about a neighbour or a friend of a friend in the course of their duties. So why is it any more dangerous for a service user to have that information than any other employee? All employees are subject to the same terms and conditions, confidentiality agreements and disciplinary procedures, so where is the problem?
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Yet ironically, despite concerns that user employees will break confidentiality, this is what some members of staff do themselves when they make a user employee's colleagues aware of their "userhood". In this case, and not for the first time, staff can learn a thing or two from service users.

Emma Harding is a service user campaigner


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