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We have encouraged each other to express ourselves freely, recognising that telling our stories usually has some relevance to the discussion.

Thursday 27 January 2005 00:00
I was chairing a meeting of one of our service user groups earlier in the month, and found myself becoming frustrated by the way that some of my colleagues kept veering off the subject under discussion, to the point where it was almost impossible to get to the end of any agenda item.

It has always been understood that most service users haven't been trained in businesslike meetings skills. In fact, we have encouraged each other to express ourselves freely, recognising that telling our stories usually has some relevance to the discussion - eventually. It means that our decisions are well informed but we rarely get to the end of an agenda.

Looking back on the meeting, I realised that all of the diversions were about one of three things: people were concerned that they wouldn't get written details of the decisions we had made about future meetings, or that they would be let down by the transport arrangements, or the discussion had reminded them of a long-held grievance about their care or treatment.

It seemed to me that these were expressions of people who felt extremely vulnerable. What they seemed to be communicating was that they felt at the mercy of others' actions, and that they had experienced being let down too much. An understandable response to this would be to try to set the arrangements in concrete - hence the badgering. I wondered why people didn't choose to write down details for themselves, until I realised that many - perhaps most - of them had lived lives that had encouraged dependency (perhaps inadvertently), and old habits die hard.

It also explained why some of the participants felt prompted to tell their stories of feelings of oppression, times of uncertainty and disappointment, and feelings of anger.

Service users with all sorts of disabilities are, rightly, being encouraged to take responsibility for their lives, to involve themselves in decision-making about the services they need, to engage with the rest of the community. But decades of immersion in a dependency culture take a long time, and some help, to shake off.
 
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