In this guest post, Melanie Goodwin explains why social workers need to know about dissociative identity disorder (formerly multiple personality disorder). She is chair and trainer at First Person Plural,
a survivor-led charity for people with DID. It has recently produced a training DVD for professionals, including social workers, providing information on DID.Trainee social workers are not taught anything about complex dissociation, yet it is thought to possibly be as prevalent as schizophrenia with dissociative features being present in many mental illnesses.
So what is DID?
Mind's guide to dissociative disorders says: "Someone with DID experiences shifts of identity as separate
personalities. Each identity may assume control of behaviour and
thoughts at different times. Each has a distinctive pattern of thinking
and relating to the world. Severe amnesia means that one identity (part)
may have no awareness of what happens when another identity is in
control."
Like many people with DID, I was abused as a child. In my case, this started at a young age and involved many perpetrators. I developed DID from very early childhood as a survival coping mechanism.
The brain, an incredible organ, enables abuse to be stored in an
unprocessed form kept separate from consciousness for many years. The
negative aspect is it also has to separate out much of the integrated
thinking and processing that enables us to function as well rounded
human beings.
Often people who have experienced severe abuse describe
themselves as robotic, machine like. The dissociation can separate
memory, emotions, thinking, feeling and the body from connecting and
moving fluidly from one complete thought process to another. The
emotions may be held separately and become personified. The body can have
a very limited relationship with the rest of you. It can feel like it
'goes off and does its own thing'. I know from first-hand experience how
limiting and confusing this is.
At every information fair I have attended for social work students, they have absolutely no problem in understanding what I am saying - many already know of someone who is DID.Yet they are taught absolutely nothing about the subject so I can only imagine their fear if someone switches in front of them and they have no tools in their tool bag to manage this situation.
So why is it not receiving the attention it needs and deserves?
Maybe it is because currently it has no National Institute for Health and Clinical Excellence guidelines attached to it, although it is in the latest Diagnostic and Statistical Manual of Mental Disorders (DSM) and the
International Classification of Diseases-10, and will continue to appear in both.
Maybe it is because there is no medication that can 'sort it out', although some of the secondary symptoms can receive short term relief.
Maybe it is because long-term therapy, the recognised help required, is deemed too expensive.
However, this is a myth. Many people are revolving door patients with enormous sums invested in them at times of crisis with no action being taken to help reach a cost-effective resolution. In one recent study the financial cost was reduced by over 70% in the first year when continuous hospitalisation was effectively supported and very quickly replaced with therapy and the person concerned now has a quality of life that continues to improve.
Many people with DID have experienced extreme, enduring and often organised abuse. This is difficult for people to comprehend and I think many professionals shy away from asking relevant questions that may expose their patients' reality. This is understandable at one level, but means that professionals will have very little to offer their patient as a result.
Therapy helped stablilise me in the present, enabling my identities to work through our individual traumas. This means I now experience more integrated thinking.
My overall behaviour, likes and dislikes are shared and most of the time we work as one brain without the strong, defensive amnesic barriers between identities preventing this happening.
Therapy is a long process partly because you are retraining the brain to form different neural pathways. For examples, those pathways relating to "flight, fight, freeze" responses become less active and others that are of more use in the present day develop and become more easily activated.
A very important part of my own healing is being is being a co-founder of First Person Plural. This allows me to share my theoretical knowledge supported with my own personal insight in helping others to understand the reality of being DID.
Recently we have made a training
DVD, A Logical Way of Being, involving three people with the lived experience, including myself, and three experienced professionals in the field of dissociation. The DVD is an excellent introduction to the subject for social workers, students and other professionals. I really hope we
are able to get this area of mental health onto the social work training agenda