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No to assisted suicide while we lack adequate social care for the dying

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In this guest blog, palliative care social worker and College of Social Work board member Suzy Croft argues against the legalisation of assisted suicide, as proposed this week by the Commission on Assisted Dying. She is writing in a personal capacity.

Pain control at end of life in NHS hospitals is frequently poor. Meanwhile, the voluntary hospice movement, with its anti-medicalising and holistic approach, has proven just how much can be done to minimise pain and discomfort and make people's last days really positive.  But there is no national outcry about this appalling imbalance. There is no pressure from the top to say something must be done.

Yet on assisted dying, the great and the good, and inquiries like the Commission On Assisted Dying, are able to command headlines and pressure for fundamental legislative change to legalise assisted dying for some people with life-limiting conditions. All this in a context of terrible cuts in end-of-life care services and in the welfare benefits and wider public services that people facing life-limiting conditions particularly rely on. Maybe it's because liberalising the law on assisted suicide is seen (wrongly) as a zero-cost exercise.

The report of the commission, chaired by Lord Falconer and set and supported by the think-tank Demos, is based on a conjuring trick and a very poor evidence base. It appeals to the desire for choice and control among all of us but does nothing to ensure that that this is really clawed back from medical professionals who still give little priority to social issues and non-curable conditions.

It says that changes in legislation for assisted dying must be accompanied by the provision of adequate support services. And where does it imagine the money to pay for this is going to come from in these times of unprecedented cuts and austerity?

The report ducks a key issue which I raised in my evidence to the commission; that assisted dying is:

"...a discussion that I almost feel that we can't indulge in yet as a society, because we don't have the social care. If we had a society where I felt that being old, disabled, having impairments, being sick, not being at work, but having other things to offer was valued and we had the kind of social care that people needed, then maybe it would be safe to look at it." (p135 of the commission report).

I also said that the "infrastructure need to support assisted dying would inevitably impact on the funding of palliative care", but again this point has not been adequately addressed.

As a practising palliative care social worker, I, like the service users I work with, see cuts in health and social care all around me. I'm seeing cuts in much-valued social workers and social work units in palliative care services, increasing responsibilities passed onto families and growing fear and anxiety among people coming to the end of their life, because of increasing social and financial insecurity.

Providing a medically-dominated legal framework to help people on their way from this life may fit an individualised idea of 'choice', but certainly does nothing to ensure people the real control that person-centred social and end-of-life care are known to make possible.

Suzy Croft is a board member of The College of Social Work and social work and bereavement team leader for St John's Hospice in central London.

New Year, new call for social care funding but will it make a difference?

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web-grab.jpgHappy New Year! I returned to work today to see social care at the top of the news headlines.

Social care's great and good have written an open letter to the prime minister (in the Telegraph) urging that he and his fellow party leaders deliver on social care funding reform this year to put an end to indignity and isolation for older people, dependence for disabled people and the denial of life opportunities for carers.

It's great to see social care on the front pages and at the top of news bulletins, and you cannot fault the timing: this is, of course, the year in which the government publishes a White Paper setting out how it plans to reform social care, including its funding. Moreover, cross-party talks are due to start.

Before Christmas, we predicted that the government would not deliver on social care funding reform, specifically that it would not implement the proposals of the Dilnot commission to put a £35,000 cap on lifetime care costs for all because of the £1.7bn bill.

An optimist might argue that we made the wrong call, and that the festive period showed that both government and opposition were up for making social care funding reform work.

On this line, Labour has shown how much of a priority it puts on social care by putting out research over Christmas showing how much charges for home care and other community services had risen in the past couple of years (6% for home care). Releasing the research, shadow minister for care and older people Liz Kendall urged Cameron to engage in serious cross-party talks on reform. The positive narrative would also point to action from government in the shape of a £170m injection of cash into social care services for people discharged from hospital to manage winter pressures over the coming months.

This money - one-tenth of the cost of Dilnot - was found from Department of Health savings but meeting the full cost of Dilnot is a call that only the Treasury (and Number 10) can make. Moreover, whatever the pros and cons of the Dilnot package it doesn't, in itself, purport to solve all or most of the problems outlined in today's letter to Cameron.

This is because Dilnot is about expanding the existing publicly-funded social care system to cover self-funders (who would benefit from the cap); it is not about filling the funding gap in the existing system (put at £2bn to £4bn), which manifests itself in rising charges and eligibility criteria, squeezes on providers and inadequate quality.

This £4bn-6bn black hole (Dilnot plus funding gap) is not the whole story. As the government, councils and the sector know, the way social care operates needs fundamental reform  through better integration with health and housing, more personalisation (in the widest sense) and more intelligent commissioning. This should generate efficiencies that would reduce the Dilnot plus funding gap black hole from £4-6bn a year to something less than this.

However, I very much doubt that even the reduced figure would be something the Treasury would stomach, particularly in the current economic climate.

That is why I remain a pessimist - though I would be beyond delighted to be proved wrong.

Couple driven to kill themselves by utter poverty

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Today's Metro has a sad story about a couple who committed suicide after becoming destitute.

Mark and Helen Mullins, of Bedworth in Warwickshire, were said to have been reduced to despair as they struggled to live off just £57.50 a week after a series of health and benefits setbacks and had their 12-year-old daughter taken into care. 

Friends have said the couple were let down by social services with one quoted as saying: "This should never have happened."

What's unclear is whether a serious case review will be conducted because the police investigation is ongoing. I'll update as I find out more.

Prosecutors take no action in assisted suicide cases

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Prosecutors are choosing to take no action in cases of assisted suicide, according to today's lead story in The Times [paywall].

The Times has learnt that since the introduction of new guidelines 18 months ago, at least 30 people suspected of helping a friend or relative to commit suicide have been referred to the Crown Prosecution Service, but none has been prosecuted.

Lord Falconer, the former Lord Chancellor, who is chairing a commission into assisted suicide, welcomed the figures as evidence of a significant change in approach.

Dementia expert in hot water over assisted suicide comments

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Martin Green, chief executive of the English Community Care Association and government dementia champion, could face the sack if pro life campaigners get their way.

Over the weekend Green told the Telegraph he backed the legalisation of assisted suicide for adults with capacity, with appropriate safeguards. He argued it was a logical extension of the choice and control mantra of the health and social care sectors.

Now the Society for the Protection of Unborn Children has lashed out by calling for him to be fired from his government dementia advisor position.

Paul Tully, general secretary of SPUC, said: "Mr Green is clearly not interested in caring for some dementia sufferers. He seems to want them dead.

"Not only would legalising assisted suicide for the elderly create insecurity and a sense of worthlessness among older people, it would also provoke discrimination and prejudice among carers and care home staff. Imagine a government advisor on race relations saying that immigrants found it difficult to commit suicide and so should be helped to do so," he added.

I don't think it's likely he'll get the sack and here's why: Green was expressing a personal view. A view, which doesn't necessarily conflict with his role and ECCA or the DH and, in 2011, is fairly mainstream.

What the Telegraph article doesn't mention mention is that Green has previously suffered with cancer. So it's understandable that he should have a strong view (Green rarely has anything but strong views) on what should be allowed at the end of life as I imagine most people faced with such a diagnosis would find themselves giving it some thought.

Therefore, I suspect that he has given it a more detailed appraisal than most. Adding that to the debate, which is a heated one on both sides, can hardly be seen as irresponsible and whether you agree or disagree with him surely forthright reasoned voices are just those that you want advising the government on assisted suicide, dementia or any aspect of policy.

Pratchett's assisted suicide documentary branded 'shocking' but 'moving'

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You might want to think twice if, like me, you had set a date in your iPlayer diary to catch-up on Terry Pratchett's Choosing to Die, broadcast last night on BBC2.

If you've got delicate sensibilities it may be a bit much.

"Shocking" is the verdict from the Herald, while "chilling" and "uncomfortable" are chosen words of The Independent.

However, "moving" is the verdict from the Telegraph this morning and the Metro reports tweeters hailing it as powerful.

This is one programme which demands to be seen, if only to establish where on that wide spectrum you sit.

Mother seeks court ruling on letting her brain-damaged daughter die

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The Daily Telegraph has an interesting story about how the mother of a brain-damaged woman  has applied to the Court of Protection for permission for artificial nutrition to be removed, leading to her death.

Her mother believes she is in constant pain, but her daughter is being represented by the Official Solicitor, who claims she is capable of communication and opposes allowing her to die.to allow her daughter's life support to be switched off.

This is interesting because it shows the power of the Court of Protection over the most vulnerable members of society.

This contrasts starkly with a documentary being presented by author and euthanasia campaigner Sir Terry Pratchett on the last moments of a terminally ill British man who travelled to an assisted suicide clinic in Switzerland. This undoubtedly will raise debate again on assisted suicide.

Spending cuts and Nick Clegg

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nick clegg.JPGWe start off today with a link to Patrick Butler's CutsBlog in The Guardian, where he has reprinted part of a prayer written by church leaders in West Yorkshire for the victims of spending cuts.

As he says: "The prayer is in part an appeal to people with responsibility for making cuts to reflect on the consequences of their decisions with humility and wisdom."

The church says it is its duty to speak up for those who will suffer most from the cuts.

Nick Clegg, everybody's favourite Lib Dem, has to run the gauntlet of his party's spring conference in Sheffield this weekend. 

The Guardian reports how strong support has emerged for an amendment to a motion at this weekend's conference, demanding that the NHS, rather than the private sector, should be the preferred provider in the health service. The amendment also calls for commissioning to remain a public function.

The Guardian story goes on to report that Clegg (above) is concerned by the revolt with care services minister Paul Burstow holding a series of telephone conferences with party members to explain the thinking behind the changes.

Similarly the BBC report that doctors' leaders have likened the shake-up of the NHS in England to the privatisation of the gas, electricity and water industries.

Finally the Daily Telegraph reports how a husband filmed his wife's death in an assisted suicide to prove it was not murder after she asked him to "end it" following 40 years of constant pain.


Nick Clegg courtesy of Flickr.com by World Economic Forum



NHS chiefs join calls for assisted dying law

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One of England's largest health authorities has said it is not opposed to assisted suicide and called for a change in the law to give patients more "choice" over how they die, reports the Daily Telegraph.

Pauline Smith, the end of life care lead for the West Midlands NHS Strategic Health Authority, said it was "not good enough" that only those who could afford to travel to Dignitas suicide clinics in Switzerland were able to control their own deaths.

This means that West Midlands has become the first health authority to back calls for a change in the law to date.

The news comes as social workers are called upon to speak out on assisted dying by a commission charged with looking into the law in this area.


Paralysed Emmerdale character to die in assisted suicide

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Emmerdale is to run a story in which a disabled character - Jackson Walsh - ends his life through an assisted suicide, the Sun has reported.
This will be controversial (if it happens - Emmerdale is not commenting at this stage) as Jackson (from what I can gather) is not terminally ill, but a disabled man in despair.
He was paralysed in a road accident last year and will ask his boyfriend and mother to help him end his life, it appears.
Hopefully, this will be something that adds to, rather than detracts from, intelligent debate on assisted suicide, which is characterised by extreme polarisation.
The news comes as social workers are called upon to speak out on assisted dying by a commission charged with looking into the law in this area.

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The Adult Care blog looks behind the policies, practices and personalities involved in the care of older and disabled people for any hidden truths, helpful tips or humour.

It is written by Community Care’s adults’ services beat editor Mithran Samuel.

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