Pain control at end of life in NHS hospitals is frequently poor. Meanwhile, the voluntary hospice movement, with its anti-medicalising and holistic approach, has proven just how much can be done to minimise pain and discomfort and make people's last days really positive. But there is no national outcry about this appalling imbalance. There is no pressure from the top to say something must be done.
Yet on assisted dying, the great and the good, and inquiries like the Commission On Assisted Dying, are able to command headlines and pressure for fundamental legislative change to legalise assisted dying for some people with life-limiting conditions. All this in a context of terrible cuts in end-of-life care services and in the welfare benefits and wider public services that people facing life-limiting conditions particularly rely on. Maybe it's because liberalising the law on assisted suicide is seen (wrongly) as a zero-cost exercise.
The report of the commission, chaired by Lord Falconer and set and supported by the think-tank Demos, is based on a conjuring trick and a very poor evidence base. It appeals to the desire for choice and control among all of us but does nothing to ensure that that this is really clawed back from medical professionals who still give little priority to social issues and non-curable conditions.
It says that changes in legislation for assisted dying must be accompanied by the provision of adequate support services. And where does it imagine the money to pay for this is going to come from in these times of unprecedented cuts and austerity?
The report ducks a key issue which I raised in my evidence to the commission; that assisted dying is:
"...a discussion that I almost feel that we can't indulge in yet as a society, because we don't have the social care. If we had a society where I felt that being old, disabled, having impairments, being sick, not being at work, but having other things to offer was valued and we had the kind of social care that people needed, then maybe it would be safe to look at it." (p135 of the commission report).
I also said that the "infrastructure need to support assisted dying would inevitably impact on the funding of palliative care", but again this point has not been adequately addressed.
As a practising palliative care social worker, I, like the service users I work with, see cuts in health and social care all around me. I'm seeing cuts in much-valued social workers and social work units in palliative care services, increasing responsibilities passed onto families and growing fear and anxiety among people coming to the end of their life, because of increasing social and financial insecurity.
Providing a medically-dominated legal framework to help people on their way from this life may fit an individualised idea of 'choice', but certainly does nothing to ensure people the real control that person-centred social and end-of-life care are known to make possible.
Suzy Croft is a board member of The College of Social Work and social work and bereavement team leader for St John's Hospice in central London.
Happy New Year! I returned to work today to see social care at the top of the news headlines.