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Community Care Live: How to make personalisation real

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There are just two days to go until this year's Community Care Live - the best free event in the social care calendar (in our humble opinion!). If you haven't booked your place, this is what we've got in store - and, in particular, here's the line-up of adult social care sessions.

Plug over (well, sort of), so let's return to the ever live topic of the future of personalisation, which will be in focus at Thursday's session to launch Making it Real, the new way councils, providers and others can measure their progress on personalisation, against 26 markers devised by users and carers to spell out what an ideal service means to them.

Produced by sector coalition Think Local Act Personal, its key principle is that users and carers should not only help decide organisations' priorities but also judge how far these are being met. But after blogging on this the other day, I was left with questions on how Making it Real would work in practice. Today I spoke to project co-ordinator Shahana Ramsden, who has provided some answers.

Given that it is a voluntary system based on self-reporting, how confident can we be that organisations are measuring progress honestly and fully involving users?

There are a variety of checks and balances in the system. Organisations signing up to Making it Real must tick a box on its web-based application form to confirm they have engaged with users and carers in deciding priorities. They must then carry out a six-month review of their progress and fill in a box demonstrating how far they have involved users and carers in assessing progress. Users and carers must also explicitly sign off on the six-month review report.

Over time, TLAP wants to see groups of Making it Real signatories grow up in different parts of the country who will challenge and support each other to improve. So, say, in Birmingham, you could have the council, several care providers, user-led organisations and charities working together to implement the system.

What encouragement/incentives will there be for organisations to sign-up to Making It Real?

TLAP is confident of getting significant extra sign-up in the coming year. Almost 300 organisations have expressed an interest. But beyond that, it will seek to convince those organisations that do not have a culture of engaging users and carers in what they do that Making it Real is for them.

The central TLAP team will put out examples of good practice and also hold events around the country to sell the idea. In addition, it has teamed up with other membership organisations - including the Dementia Action Alliance and the My Home Life movement to improve residential care - to reach out to as many organisations as possible.

How does Making It Real tie-in with all the other systems of performance monitoring and management in social care?

For councils and providers, it's important that Making it Real doesn't appear as yet one more initiative that they need to comply with. TLAP says it is working to ensure that its markers are compatible with the various other performance frameworks in social care. So:-

  • It has compared the markers against the government's outcomes framework for adult social care, which councils are expected to make progress against, and there is something like a 90% overlap.
  • The Towards Excellence in Adult Social Care programme, the local government-led initiative to help councils improve their performance through peer reviews and other measures, has implementing Making it Real as one of its main priorities.
  • For providers, the Care Quality Commission is looking at how far the markers overlap with its essential standards, which providers are regulated against.
So that's what I learned, but I'm sure there's plenty I haven't thought of. Do come along and pose your own questions at Community Care Live on Thursday 17 May at 2.30pm.

(Image: John Behets)

The rise and rise of the care provider ratings industry

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I was struck this week by how many services have sprung up that provide ratings of care providers, based primarily on the submitted views of service users, families and others who choose to contribute.

Within the space of a day, I received a press release from Searchline Publishing about its new top 1000 care homes with nursing listing, and one from social enterprise Really Care about a new telephone review service that it has launched for its Better Care Guide ratings service.

It's not so long since the Good Care Guide was launched by charities United for All Ages and My Family Care to provide ratings for care homes and home care services.

This is all significant for three reasons:

One thing that I know that providers have been concerned about is the potential for vexatious reviews to be published or for a minority of poor reviews to create an unduly poor impression of a service.
All these ratings services have a way of dealing with these issues. Searchline says its researchers make checks on the reviews submitted; the Better Care Guide enables providers to register and respond to comments made about them; and the Good Care Guide has a system for reviews to be disputed and investigated. Of its first 1000 reviews, 10% were disputed and just 14% of disputed reviews were reinstated.

How these ratings systems fare will be tested over time. However, a new player is due to enter this market from within the social care establishment - the Social Care Institute for Excellence. Scie is due to launch its Find Me Good Care site this summer, providing general information about social care, alongside three types of information about individual services: the CQC report, information from the provider and feedback from service users.

Scie says it will moderate feedback to ensure individuals and organisations are treated fairly.

Scie's service will clearly be styled as the "official" care ratings service, and is likely to carry the stamp of government approval. I suspect it may also be the service that providers have most confidence in. But where service users and relatives go, both to seek advice and rate services, is anybody's guess.

(Image on Flickr from MinivanNinja)

10 questions you want answered in wake of Panorama

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Question mark by purpleslog.jpgMonday's Panorama on the abuse and neglect of dementia patient Maria Worroll by staff at Ash Court Care Centre in London has provoked much comment, on this blog and many others, but much of this concerns what the programme didn't cover as much as what it did.

I thought it might be worth picking out 10 of the key issues that people would like to see explored.

How far is abuse a product of how society views older and disabled people and what can be done about it?

This has been mentioned by several commentators (see points three and four of former Department of Health official Rob Greig's blog, for example). Greig points to the ongoing characterisation of older people as burdens ("bed blockers", for instance), while you could argue that attitudes to disabled people are going into reverse as public spending cuts start to bite. But what's to be done about this in terms of public campaigning?

How far is more funding the answer?

The under-funding of social care has been cited by the majority of people who have commentated on this story (see social worker Ermintrude2's blog post for an example) in so far as it contributes to low pay, inadequate training, commissioners squeezing providers etc. But how far is more funding the answer and how far are we using the money we do have in the wrong way?

Is the model of care wrong? Should we cease using large care homes?

One way in which some people think we are using money wrongly is on directing resources towards large care homes and other establishments. Social care trainer Connor Kinsella refers to "60-bed three-tier monstrosities which are more about battery farming than any semblance of residential care". As well as a lack of personalisation and of a sense of home, the charge is that these establishments can be closed to scrutiny and thus be a breeding ground for abusive behaviour. But what would be the implications of moving to six-bed care homes for older people?

Should care services be run for profit?

It seems facile to be asking this when the majority of adult care services are run for profit, but a lot of people have reacted to the programme by saying that the drive for profit sucks investment out of salaries, training and other things we might value. I was particularly struck by a comment on my blog by domiciliary care agency owner Nicola Walton-Lowe about how she ploughs all her profits back into the business to invest in her staff pay, training and supervision, contrasting this with other providers where "training is minimal if non-existent, it's all about profits".

How far does the low pay and status of care workers contribute to abuse?

Pretty much every commentator has cited the low pay and status of care workers as a problem though many have also pointed out that the vast majority do not abuse and seek to provide good care. Ermintrude2 gave this powerful comment: "Staff who are not respected and who are treated as expendable and with little respect are more likely to pass that feeling of powerlessness on to others." It would be good to see more research into this link.

Panorama programme fails to explore causes of poor care

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Tonight's Panorama programme left those of us watching it aghast at the abuse and poor care received by Maria Worroll. The images were graphic and either shocking or shockingly familiar, depending on your point of view.
But the programme left unexplored the causes of the scenes it depicted - either in the individual case or more widely.


If you didn't catch the programme, do have a look at the Twitter debate (#panorama) as it raised many of the issues that the programme was unable to raise.

Low pay and poor culture

One scene showed two care workers manhandling Mrs Worroll while discussing their poor pay and the lack of staffing in the home. Then there was an interesting comment from Bradford University dementia expert Paul Edwards about how the poor care on show wasn't a result of a lack of money but a poor culture or poor attitudes.

But this issue - the extent to which low pay/status/funding is driving poor care or how far it is a result of culture - was left totally unexplored.
Meanwhile, on Twitter, I received this comment from Bridget Penhale (@bpenhale), co-editor of the Journal of Adult Protection:

"Maybe low pay/status contribute to impoverished cultures of care+ poor care practices"

This is a fascinating point but beyond the ability of a half-hour programme to explore.

Inspection

CQC took a bit of a bashing (for why, read my last post on this) in the programme (but didn't do itself any favours by not putting someone up for interview) but there was no exploration of why there may (or may not) be a problem with the inspection system.

Issues discussed on Twitter but not explored in any depth in the programme included:-
  • Should CQC have specialist or generic inspectors?
  • How often should care homes be inspected?
  • How far should the CQC be involved in driving improvement as opposed to checking compliance?

There was criticism of the reports produced by the CQC in the wake of the abuse coming to light at Ash Court Care Centre but this whole area was all rather left hanging.

Rogue carers versus poor management

We didn't even get to the bottom of the key issue at the heart of the abuse faced by Maria Worroll: was this a case of rogue carers or poor management?

Unfortunately, the provider, Forest Healthcare, didn't put anyone up for interview, and we didn't really have any exploration of its recruitment, training or supervision regimes.


The whole experience left many of us on Twitter yearning for some more in-depth exploration of these and many of the other more fundamental causes behind the problems facing the care sector. Would anyone be prepared to take this on?

CQC in the dock over care home abuse in Panorama programme

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It looks like this evening's care home abuse Panorama programme will be putting the Care Quality Commission in the dock. To recap it concerns the case of a woman with dementia, Maria Worroll, who was abused by a care worker, who has since been jailed, at Ash Court Care Centre in London, where four other staff were also sacked in relation to the same case.
The case made it on to this morning's Today programme, where CQC deputy chief executive Jill Finney received a going over from John Humphrys about its role in the case, fuelled by criticisms from her fellow interviewee on the programme, Judith Downey of the Relatives and Residents Association.
These appear to be the issues:-

Rogue care workers versus poor management

Before the abolition of quality ratings in 2010, Ash Court received an 'excellent' rating. The abuse that led to the conviction of care worker Jonathan Aquino took place in June 2011, after it was brought to light by secret filming by Maria's daughter, Jane Worroll.
The RRA's contention was that there was a poor culture at the home that should have been identified by the CQC. This is on the basis that four staff, besides Aquino, were sacked.
The CQC's response was that this was "deliberately concealed abuse", which it cannot do anything about until it becomes less concealed and is reported to the regulator.

Frequency of inspection

The RRA is calling for care homes to be inspected twice a year (as was the case some years ago). The CQC has recently doubled minimum inspection levels to once a year but at the time of the abuse that took place in this case it was once every two years. The implication is that more frequent inspections would have identified a problem at Ash Court. Again, the CQC would reject this view on the basis that this was "deliberately concealed abuse".

Quality of inspection

The CQC carried out two further inspections, in June and August 2011, when the abuse came to light at Ash Court. Both found that things were fine at the home, and that the removal of the staff concerned had removed the threat to residents' safety. Its conclusions were on the basis of discussions with residents and their families, though not Jane Worroll, Maria's daughter. RRA has made a lot of the CQC's failure to talk to Jane Worroll, but the CQC has said this was so as not to prejudice the police investigation.

Also, of course, if there was a culture of poor practice at the home, as the RRA seems to allege, this should have been picked up in these CQC inspections. The RRA has praised the role of Camden Council in its oversight of Ash Court, as the local safeguarding authority and one of the main purchasers of places. On the Today programme, Downey seemed to suggest that a Camden report on the home, run by Forest Healthcare, had raised significantly more issues than the CQC reports did.

Debate the issues raised by the programme

Anyway, I will be on Twitter tonight (@mithransamuel) so look forward to debating the issues raised by the programme with you.

Do we need a moratorium on CQC bashing?

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I'm starting to feel sorry for the Care Quality Commission. No matter how hard it tries to escape its legacy of failure - Winterbourne View, focusing on registering providers at the expense of inspecting them, knowledge gaps among inspectors - somebody else decides to remind them.

Today it's the turn of the Commons public accounts committee whose report on the CQC says that the commission has been poorly led and governed, failed to define or measure its impact, not responded to whistleblowers and demonstrated inconsistency in its inspections.

Cynthia Bower.jpgThe latest report follows highly critical verdicts on the CQC in the past year from the health select committee, the National Audit Office and the Department of Health, whose capability and performance review precipitated the resignation of CQC chief executive Cynthia Bower (left). In the same period, it has been exposed over its failure to respond to whistleblower Terry Bryan in the Winterbourne View case and had its leadership slammed by one of its own board members, Kay Sheldon.

It's great sport and no one would like to see a public body escape scrutiny for its failures, but you do wonder whether the sheer number of negative reports is helping or hindering CQC's improvement.

The CQC itself is aggrieved that the public accounts committee report, which is based on last year's National Audit Office report, does not take into account improvements made in the past few months, such as increased inspection numbers and enhanced responses to whistleblowers.

There is a history of low morale at the organisation - and its predecessor, the Commission for Social Care Inspection - and constant bad publicity cannot be doing much to improve matters.

Perhaps we need a moratorium on CQC bashing while it seeks to implement its new regulatory model, deliver annual inspections of most health and adult social care providers, appoint a new chief executive, improve the way it measures its performance and ensure its staff receive the training and support to tackle inconsistency in inspection.

In this regard, one recommendation in the PAC report makes perfect sense - that the CQC doesn't have any more responsibilities added to its portfolio (specifically the Human Fertilisation and Embryology Authority) - given how far it has struggled with those that it does have (a list that is already being added to with the registration of GP practices next year).

Cynthia Bower's resignation and the future of the CQC

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Cynthia Bower's resignation as chief executive of the Care Quality Commission was not unexpected, but it seems unlikely that it will prove sufficient to end the climate of criticism surrounding the regulator.
Critics are already calling for more heads to roll, and three highly critical reports about the regulator (from the public accounts committee, the public inquiry into the Mid-Staffordshire hospital scandal, and the serious case review into Winterbourne View) are due in the next couple of months.

Bower's announcement coincided with the publication of yet another review - a Department of Health capability review into the CQC - and while there are some positives in this, it is worth noting the significant criticisms it contains.

Adult safeguarding - lack of clarity on roles


"There remains risks of a lack of clarity on safeguarding roles, and risks that responsibilities are not clear between CQC and local authorities," says the review, which calls on the CQC to clarify respective roles with councils.

This is pretty striking to me, as the respective roles of CQC and councils should have been settled by a protocol published in 2010 setting out the limits of the regulator's role in this area. This was the latest in a series of protocols on this issue (see this one from the CQC's predecessor, the Commission for Social Care Inspection).

Disappointingly, the review doesn't present its evidence for this lack of clarity, but the fact that it draws this conclusion is a concern, as a lack of clarity about roles can easily translate into increased risks for service users.

Inspections (and inspectors?) must be tailored to the service in question

After inheriting inspectors from health and social care-specific regulators, CQC instituted a generic model in which the same people inspected hospitals and care homes. However, the review find that CQC's confidence in the generic inspector model is not shared by providers who feel themselves on the receiving end of inconsistent judgements.
Hence, the review calls for inspectors to have more access to sector-specific expertise and for the CQC to ensure that it adjusts its approach to the different risks presented by different health and social care settings.

Is TripAdvisor-style care ratings site a good idea?

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Well, the government has been keen to have a TripAdvisor-style site to enable people to rate the care services they or their families receive, and now we have the Good Care Guide.
Launched at the weekend by charities United For All Ages and My Family Care, people are already using it to rate older people's and childcare services out of five (for quality, cleanliness and value for money).

The site, which currently covers England only, also provides access to Care Quality Commission reports and services' websites.

Social care training manager Tony Butcher has given the site the thumbs-up in a blog today, which argues that "social care providers will need to be much more aware of customer service skills and the potential impact of giving bad service to care users and their relatives".

Looking at the site, what looms largest on the profile of any service is its consumer rating. It could receive a glowing account from the CQC and be relatively appreciated by the majority of users and families but a poor review from a single individual - often anonymous - may well be what any potential customer takes away from the site. Conversely, a service that is delivering poor care may appear better than it really is by its consumer rating.

This effect is magnified at the moment as so few people have posted reviews. This time next year the site should hopefully provide a richer account of many of the services listed by having multiple ratings that (presumably) would be averaged out to create an overall score.

However, it would be good to see consumer ratings placed alongside other pieces of information (from CQC, local authority/NHS commissioners, local involvement networks etc) at the front end of the site, rather than people having to click through to access this other information.

This may be less straightforward - and much more work to develop - but it arguably provides a fairer account of each service.

In his blog, Butcher adds: "Comment has been made that one malicious comment could ruin a business, that is certainly true, however the issue has to be that providers will need to monitor the comments they are receiving and act accordingly."

Maybe. But the ability to monitor comments and respond accordingly may well be unevenly distributed between providers, based on their size and economic backing.

I don't want to be a naysayer. But I think we need to consider these issues as we seek to inject consumer power into social care.

Sector-led scrutiny in adult care: where's the transparency?

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Burstow.gifSince care services minister Paul Burstow scrapped annual assessments of council adult social services in November 2010, performance management of councils in this area has rather disappeared without trace at a national level.

It's not that it isn't happening: we have a Promoting Excellence in Councils' Adult Social Care Board, whose role is to keep track of performance in all councils and work with authorities to drive improvement. It embodies "sector-led improvement" (i.e. local authorities taking responsibility collectively for improved performance) and includes representatives from the Local Government Association, Association of Directors of Adult Social Services, the Care Quality Commission and the Social Care Institute for Excellence.

But while there is a short paragraph on the board on the LGA website, you'd be hard-pressed to find out much about its work online.

This is in stark contrast to the previous system in which the Care Quality Commission produced an annual report on local government performance in adult social care, with separate reports and performance scores for each council.

The sad thing is that sector-led improvement work is happening. The LGA is conducting peer reviews of councils, where people from within local government go and assess performance in an authority, and there is more targeted support for councils that have been previously deemed to be falling short.

But finding information on progress and the outcomes of peer reviews is next to impossible (well, I've found it next to impossible). Again, this would not have been the case in respect of inspection reports when we had a national system of annual assessment.

At a local level, councils are supposed to be producing local accounts of their performance to provide citizens with a means of scrutinising what is going on. Here are a few that have been published for 2010-11 - Stockport, Hackney, Rotherham - to give you a flavour.
In all cases of published local accounts, I have no doubt, there has been a transparent process locally, where the report has been published prominently, scrutinised by backbench councillors and had input or a critique from the user-led local involvement network.

However, what we don't know is whether all councils have published such a report, or whether any independent judgement has been reached on their quality i.e. the extent to which they involve a genuine self-assessment, rather than a public relations exercise.

I'm not calling for a return to national assessment of council adult social services by the independent regulator. Well, not necessarily. I just think that the system of sector-led assessment needs to prove itself to be something other than a way of making performance assessment cheaper. And for that, we need much more transparency, nationally.

Does David Cameron understand the CQC's role?

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Totally missed this but a thoroughly damning report was published last month into adult social services at Wirral Council.

It was into the events surrounding the council's overcharging of several learning disabled service users, which was exposed by social worker Martin Morton, who was later forced to resign.

I've stuck a bit more on the report at the bottom of this post, but the man on my left was quizzed about it at prime minister's questions yesterday by Wirral West MP Esther McVey.

Cameron accepted McVey's call to look into the report (or, rather, to get care services minister Paul Burstow to do so).

But what's interesting is what he went on to say about the Care Quality Commission:



"The Care Quality Commission, which has had a difficult birth, clearly has a really important job to do in ensuring that its inspections are thorough and targeted in the areas where they are most needed."


The Wirral report concerns a local authority adult social services department's failings. In November 2010, Cameron's government took the decision to end CQC assessments of local authority adult social services departments, replacing it with a sector-led assessment system led by the Local Government Association and the Association of Directors of Adult Social Services, among others.

So while we might all agree that the CQC has an important job to do, it's unlikely to be in ensuring Wirral responds to this report. So the question is, does Cameron know what he's talking about?

Damning CQC inspection

Ironically, Wirral's adult social care failings had been exposed by the CQC before Cameron's government stripped it of these powers, following an inspection in 2010 that found it was performing poorly on safeguarding.

There is an exception to what I've just said, which is if the LGA, Adass and the CQC decide collectively that problems at Wirral Council are so serious - and that sector-led intervention cannot make a sufficient difference - that an emergency CQC  inspection is warranted.

But somehow I don't think Cameron was opening the way for such an intervention with his comments. I think he was just a bit loose with his tongue and not very well briefed. (Apologies prime minister if I'm wrong).

About the Adult Care blog

   
 

The Adult Care blog looks behind the policies, practices and personalities involved in the care of older and disabled people for any hidden truths, helpful tips or humour.

It is written by Community Care’s adults’ services beat editor Mithran Samuel.

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