Book Review – Caring for people with learning disabilities who are dying

Caring for people with learning disabilities who are dying

Noelle Blackman and Stuart Todd
Worth Publishing, 2005 
ISBN 1903269172, £7.50

STAR RATING: 4/5

This short handbook is aimed at support staff in learning difficulties services, writes Mandy Johnson.

It strikes a balance between factual information and sensitive examination of difficult questions, such as supporting someone to understand their diagnosis.

The authors have successfully translated their academic expertise into a compassionate book.

Spirituality is included, and how staff can ensure people’s final phase of living (and eventually their dying) reflects their wishes.

The book continually encourages staff to look outside the service and think about their relationships with the dying person’s family; and the importance of making links with other useful services like Cruse.

It would have been useful to mention situations where the person cannot understand or consent to medical treatment; or may refuse attempts at treatment. Staff may need support and clarity on the law in this area.

This useful book also includes a reading list and further contacts. As a whole, it provides a helpful resource for any staff team supporting a terminally ill person.

Mandy Johnson is person-centred planning co-ordinator, Hampshire Council